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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International WAGR Syndrome Association

a/k/a: IWSA

Address

1218 Wooded Knoll
San Antonio, TN 78258
USA

800 Number

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TDD

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Email Address

reachingout@wagr.org

Website

http://www.wagr.org/

The International WAGR Syndrome Association is a support and information group for families affected by WAGR syndrome and/or aniridia, as well as the medical and educational professionals who work with these families. WAGR is an acronym, which stands for Wilm's tumor, aniridia, genito-urinary abnormalities, and mental retardation. A combination of two of these conditions may indicate WAGR syndrome. WAGR syndrome is caused by a deletion in the short arm of chromosome 11 (11p13-). International WAGR Syndrome Association was established in 1998, and encourages its members to share information on the management of symptoms and related topics. Its services include an Internet support group, an informative website, patient networking, and a quarterly newsletter. All services are free, and available to anyone in the world.

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