You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Hunter's Hope Foundation, Inc.

a/k/a: Hunter's Hope


PO Box 643
6368 West Quaker Street
Orchard Park, NY 14127





800 Number




Email Address


The mission of the Hunter's Hope Foundation, Inc., is to foster public awareness of Krabbe disease and other leukodystrophies in order to increase the likelihood of early detection, to provide information and service linkages to families of children with leukodystrophies, to fund research aimed at identifying new therapies, and, ultimately, to seek a cure. Leukodystrophy is the name given to a group of very rare, progressive, metabolic diseases that affect the brain, spinal cord and, often, the peripheral nerves. Krabbe disease is one type of leukodystrophy. A not-for-profit organization, the Hunter's Hope Foundation serves an international audience, providing educational materials for patients, families, health professionals, and the public. It also provides advocacy, referrals, and a registry.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .