You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Nail Patella Syndrome Networking/Support Group

a/k/a: NPS

Address

67 Woodlake Drive
Holland, PA 18966
USA

Phone

215-504-4659

Fax

215-504-4659

800 Number

--

TDD

--

Email Address

pacali@aol.com

Chapters

1

Website

http://members.aol.com/PACALI/npspage.html

This all-inclusive group offers a web site with medical information, photos and x-rays of typical characteristics, as well as links to NPS genetic research, a photo album and a discussion group for people with NPS and their families. The discussion group currently has over 375 members from all over the world. NPS is a rare genetic disorder causing abnormalities of the fingernails, knees, elbows, hips and other joints. Clubbed feet, kidney disease, glaucoma and a host of other anomalies may also be associated with NPS. The discussion/support group was established in 1996 for people with Nail Patella Syndrome, their families and medical professionals.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.