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Nail Patella Syndrome Networking/Support Group
67 Woodlake Drive
Holland, PA 18966
This all-inclusive group offers a web site with medical information, photos and x-rays of typical characteristics, as well as links to NPS genetic research, a photo album and a discussion group for people with NPS and their families. The discussion group currently has over 375 members from all over the world. NPS is a rare genetic disorder causing abnormalities of the fingernails, knees, elbows, hips and other joints. Clubbed feet, kidney disease, glaucoma and a host of other anomalies may also be associated with NPS. The discussion/support group was established in 1996 for people with Nail Patella Syndrome, their families and medical professionals.
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