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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Nail Patella Syndrome Worldwide

a/k/a: NPSW

Address

14980 Stream Valley Court
Haymarket, VA 20169
USA

Phone

703-626-6852

800 Number

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TDD

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Email Address

info@npsw.org

Website

http://www.npsw.org

The Nail Patella Syndrome Worldwide was established to support individuals with NPS. It provides medical information, networking opportunities, and friendship. The group publishes a quarterly newspaper and has also published a medical brochure. The organization is based in California, but serves members from around the world. Nail Patella Syndrome is a rare genetic disorder that is usually apparent at birth or during early childhood. It is often misdiagnosed. Although the associated symptoms and physical characteristics may vary, characteristic abnormalities include improper development of the fingernails, toenails, kneecaps, and certain bones at the bend of the elbow. In addition, this syndrome sometimes results in abnormalities of the eyes and kidneys among other symptoms.

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