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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Children's Gaucher Research Fund

a/k/a: CGRF

Address

P.O. Box 2123
Granite Bay, CA 95746-2123
USA

Phone

916-797-3700

Fax

916-797-3707

800 Number

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TDD

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Email Address

research@childrensgaucher.org

Website

http://www.childrensgaucher.org

The Children's Gaucher Research Fund (CGRF) is a 501(c)(3) non-profit organization that raises money for medical research aimed at finding a cure for Gaucher disease type 2 and type 3. It also provides support to families of affected children and allows families who have lost a child to this disease to participate, in their child's honor, in fund-raising for medical research. Gaucher disease is a rare, inherited, metabolic disorder in which the body is unable to rid itself of worn-out red and white blood cells so that these cells accumulate in the liver, spleen, bone marrow, and, sometimes, heart and lungs. In Children's Gaucher disease, more commonly known as types 2 and 3 Gaucher disease, all of the above-mentioned symptoms exist, but the disease is also characterized by certain neurologic symptoms such as ocular motor apraxia, a defect of horizontal eye movements; breathing problems and, sometimes, speech or cognitive delay. Founded in 1999, the Children's Gaucher Research Fund has approximately 1900 members. It serves families in the United States and Canada.

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