The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
HITS (UK) Family Support Network
33 Fernworthy Close
Devon, TQ2 7JQ
The aim of HITS (UK), Family Support Network, is to enrich the lives of children and families affected by Hypomelanosis of Ito by encouraging communication, facilitating the flow of information between families and health professionals, and generally reducing the sense of isolation patients and families may experience. A voluntary, non-profit organization, the network publishes a quarterly newsletter, organizes an annual family event, and promotes broader understanding of hypomelanosis of Ito. This rare disorder can affect individuals in many different ways. It may produce dermatologic or neurologic symptoms, specific eye conditions, seizures, autism, and/or abnormalities of the bones, among other things. The Family Support Network operates predominantly in the U.K., where it is based, but will provide assistance in other parts of the world, if necessary.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.