You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Bernard-Soulier Syndrome Website and Registry

a/k/a: RCSI

Address

Royal College of Surgeons in Ireland
123 St. Stephen's Green
Dublin 2,
Ireland

Phone

353-140-22100

Email Address

bernard-soulier@rcsi.ie

Website

http://www.bernardsoulier.org

The Bernard-Soulier Syndrome Website and Registry (BSSWR) has been set up by Dr. Dermot Kenny, Director of the Clinical Research Centre at the Royal College of Surgeons in Ireland, to help physicians and patients learn more about this syndrome. Bernard-Soulier syndrome is a severe, hereditary, rare bleeding disorder. It is hoped that physicians will contribute information to the registry to build a body of valuable information over time. The site is run on a not-for-profit basis and is supported by a number of other physicians and scientists with a particular interest in this syndrome.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .