You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Down Syndrome Congress

a/k/a: NDSC


30 Mansell Ct
Suite 108
Roswell, GA 30076





800 Number




Email Address




The National Down Syndrome Congress (NDSC), a non-profit organization established in 1971, is committed to building a sense of community among all those concerned with Down syndrome. The congress provides leadership through of public policy and encourages ethically responsible research in all aspects of Down syndrome. It seeks to educate professionals, parents, and the community about Down syndrome, and fosters self-advocacy, rights, and full participation in all aspects of community life. The NDSC is also dedicated to developing position statements on major issues; providing a network that links state and local groups and affiliates; and enhancing relationships within the organizations’ communities and the broader disability community. The National Down Syndrome Congress provides a telephone hotline offering information on any subject related to Down syndrome. It conducts an annual convention, provides appropriate referrals, and coordinators a local parent group network and maintains directory of such groups to promote parent-to-parent and parent-to-professional networking.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .