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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Headlines - Craniofacial Support Group

a/k/a: Headlines


128 Beesmoor Road
Frampton Cotterell
Bristol, BS36 2JP
United Kingdom



Email Address


The purpose of Headlines, The Craniofacial Support Group is to support, inform, and advise anyone having, or dealing with, craniosynostosis and associated conditions and syndromes, such as Crouzon syndrome, Saethre-Chotzen syndrome, Pfeiffer syndrome, and Apert's syndrome. These are conditions and syndromes in which abnormalities of the shape of the skull affect the appearance of the head and/or face. Based in the United Kingdom, Headlines has members in 16 countries. In addition to patient education and networking, it provides other services that include publication of a newsletter and support of health professionals. The organization was established in 1993.

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