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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Foundation for Children with Atypical HUS

a/k/a: Atypical HUS

Address

c/o Bill Biermann
7018 Forest Oak Drive
Barnhart, MO 63012
USA

Phone

636-942-4425

Fax

314-429-3790

800 Number

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TDD

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Email Address

bbiermann@premier-ks.com

Website

http://www.atypicalhus.net/

The Foundation for Children with Atypical HUS is a non-profit organization that provides information to families affected by this disease, provides support for families and loved ones, maintains a registry of cases in the United States, and raises funds for research. The letters "HUS" stands for "hemolytic uremic syndrome". Hemolytic refers to the blood, and uremic refers to kidney function. Regular HUS, a rare condition, is caused by a bacterium such as e-coli. Atypical HUS is a rare condition that is not caused by an external agent. Instead, a chain of events, such as blood clotting, begins that causes damage to the vascular system, red blood cells, lowering platelet counts, and ultimately, also affects kidney function. The Foundation for Children with Atypical HUS has two websites: one is an interactive site: www.atypicalhus.org and the other is an informational site: www.atypicalhus.50megs.com.

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