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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Children's Cardiomyopathy Foundation

a/k/a: CCF


PO Box 547
Tenafly, NJ 07670





800 Number




Email Address


The Children's Cardiomyopathy Foundation (CCF) is a 503(C)(3) national non-profit organization dedicated to finding causes and cures for pediatric cardiomyopathy through the support of research, education, and increased awareness and advocacy. CCF started in 2002 with one family's determination to call attention to this poorly understood heart disease. Since then, CCF has committed more than $1.8 million to research and treatment initiatives and grown into a global community of families, physicians and scientists focused on improving diagnosis, treatment and quality of life for children with cardiomyopathy. CCF brings medical and health experts together to advance knowledge of cardiomyopathy and develop better support services and resources for affected families. Guided by a medical advisory board, CCF supports a research grant program and sponsors scientific meetings and working groups. CCF also provides a wide range of patient support resources including educational materials, newsletters, information on specialists, a community forum, and a comprehensive website with medical information, coping and healing tips and relevant resource links.

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