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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Cardio-Facio-Cutaneous International

a/k/a: CFCI


183 Brown Road
Vestal, NY 13850





800 Number




Email Address


The Cardio-Facio-Cutaneous International is an 501(c)(3) international support group for families', doctors, teachers, therapists, and other involved individuals who are assisting with children born with the very rare cardio-facio-cutaneous syndrome. The support group acts as a clearinghouse for information on all aspects of CFC syndrome. Once families register, they are included on a mailing list for newsletters, CFC Parent's Guide, and information on current research and conferences.

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