You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sotos Syndrome Support Association of Canada

a/k/a: SSSAC

Address

1944 Dumfries
Montreal
Quebec, H3P 2R9
Canada

Phone

--

Fax

514-731-1255

800 Number

--

TDD

--

Email Address

info@sssac.com

Website

http://www.sssac.com

The Sotos Syndrome Support Association of Canada is to provide support to persons with Sotos syndrome and their families. Since a diagnosis of Sotos syndrome is typically made in the first few years of life, it can be trying for families as they try to deal with the diagnosis, determine what they can expect for their child, and learn what they can do to best support their child's development. SSSAC endeavors to support families by providing them with information by way of handbooks, pamphlets, Internet, public lectures, and discussions, and with emotional support by facilitating discussions with other parents who have been through similar experiences. SSSAC also promotes public awareness of Sotos syndrome in each province in Canada, among educators, families and members of the medical community.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .