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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Hereditary Neuropathy Foundation, Inc.

a/k/a: HNF


432 Park Avenue South, 4th Floor
New York, NY 10128



800 Number




Email Address


The Hereditary Neuropathy Foundation is committed to increasing awareness of Charcot Marie Tooth disease (CMT) and funding research. CMT is an inherited neuromuscular disease that is characterized by muscle weakness and atrophy, primarily in the legs but also in the small muscles of the hands. It can impair a person's ability to walk, impede the normal use of one's hands, and even result in the loss of sensation in both hands and feet. NHF publishes educational content, including video streaming, related to CMT on its website. It is committed to expanding awareness of the genetics, diagnosis, and coping methods, both physician and emotional, associated with CMT. HNF seeks to increase publicity and media attention to inform the public about CMT and the need for early intervention.

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