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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Pleuropulmonary Blastoma Registry

a/k/a: International PPB Registry

Address

Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S.
Minneapolis, MN 55404
USA

Phone

612-813-7115

Fax

612-813-7108

800 Number

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TDD

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Email Address

gretchen.williams@childrensmn.org

Website

http://www.ppbregistry.org

The International Pleuropulmonary Blastoma (PPB) Registry is a non-profit organization of physicians, scientists, and data analysts from many institutions who, with the cooperation of families and physicians all over the world, collect and evaluate cases of pleuropulmonary blastoma (PPB). The goals of the PPB Registry are to provide pathologic review, to make treatment recommendations, to dispense information to all families and physicians, to collect clinical data on this disease, to facilitate basic scientific research on PPB, and to publish its observations periodically. Pleuropulmonary blastoma (PPB) is a rare childhood cancer occurring in the chest, specifically in the lungs or in the coverings of the lungs called "pleura".

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