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Beckwith-Wiedemann Family Forum
105 Yehudah St. Apt 2
The Beckwith-Wiedemann Family Forum (BWFF) was created as a way for people interested in BWS to get support and share information. Beckwith-Wiedemann syndrome is a rare genetic disorder characterized by a broad spectrum of symptoms and findings that may include enlargement of certain abdominal organs, advanced bone age, and greater than normal length and weight at birth. The major goals of the Beckwith-Wiedemann Family Forum are to provide a place where people interested in BWS can find information quickly, to provide a forum for interested people to meet on the Internet to discuss BWS related issues, and to let newly affected families of BWS know they are not alone.
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