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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Children's Fund for Glycogen Storage Disease Research, Inc.

a/k/a: CFGSDR

Address

917 Bethany Mountain Road
Cheshire, CT 06410
USA

Phone

203-272-2873

Fax

203-272-6695

Email Address

info@curegsd.org

Website

http://www.cureGSD.org

The Children's Fund for Glycogen Storage Disease Research (CFGSDR) is committed to funding research so that children born with glycogen storage disease type I (GSD1) will benefit from early detection, treatment and an eventual cure. It is a public, non-profit, 501(c) 3 foundation established in April of 2002 to make a difference in the lives of children and families affected by GSD1. This disease, also known as Von Gierke disease, is a hereditary metabolic disorder caused by the inborn lack of the enzyme glucose-6-phosphatase. Parents, families, run the foundation and friends of children affected by this disease. All fundraising and administration is done on a voluntary basis.

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