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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Registry for Childhood Onset Scleroderma

a/k/a: NRCOS

Address

University of Pittsburgh
Arthritis Institute
Pittsburgh, PA 15261
USA

Phone

412-383-8674

Fax

412-648-9643

800 Number

800-603-8960

Email Address

jablonj@msx.dept-med.pitt.edu

Website

http://www.scleroderma.org/medical/juvenile_registry.shtm

The National Registry for Childhood Onset Scleroderma was created to provide information for, and stimulate research on this rare group of diseases. The creation of the registry was sponsored by a grant from the Scleroderma Foundation. Its mission is to stimulate future research to identify and study specific antibodies (substances in the blood that help fight infections) that patients with scleroderma often have in their blood. Scleroderma is a rare connective tissue disorder. There are several types.

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