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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Prion Disease Pathology Surveillance Center

a/k/a: NPDPSC

Address

Institute of Pathology
Case Western Reserve University
Cleveland, OH 44106-4907
USA

Phone

216-368-0587

Fax

216-368-4090

Email Address

cjdsurv@cwru.edu

Website

http://www.cjdsurveillance.com

The National Prion Disease Pathology Surveillance Center (NPDPSC) was created in 1997 as the national center to examine tissue for human cases of suspected prion disease occurring in the United States, most notably Creutzfeldt-Jakob disease (CJD). Creutzfeldt-Jakob disease is an extremely rare degenerative brain disorder (i.e., "spongiform" encephalopathy) characterized by sudden development of rapidly progressive neurological and neuromuscular symptoms. The NPDPSC offers referrals, reports, and research information to patients, family members, health professionals, and the general public. NPDPSC works closely with the Centers for Disease Control and Prevention (CDC) to monitor the prevalence of prion diseases in the USA and to investigate possible cases in which the disease has been acquired.

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