You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Prion Disease Pathology Surveillance Center

a/k/a: NPDPSC


Institute of Pathology
Case Western Reserve University
Cleveland, OH 44106-4907





Email Address


The National Prion Disease Pathology Surveillance Center (NPDPSC) was created in 1997 as the national center to examine tissue for human cases of suspected prion disease occurring in the United States, most notably Creutzfeldt-Jakob disease (CJD). Creutzfeldt-Jakob disease is an extremely rare degenerative brain disorder (i.e., "spongiform" encephalopathy) characterized by sudden development of rapidly progressive neurological and neuromuscular symptoms. The NPDPSC offers referrals, reports, and research information to patients, family members, health professionals, and the general public. NPDPSC works closely with the Centers for Disease Control and Prevention (CDC) to monitor the prevalence of prion diseases in the USA and to investigate possible cases in which the disease has been acquired.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .