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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Pachyonychia Congenita Project

Address

2386 East Heritage Way, Suite B
Salt Lake City, UT 84109

Phone

877-628-7300

Fax

877-628-7399

800 Number

877-628-7300

Email Address

pcproject@pachyonychia.org

Website

http://www.pachyonychia.org

The Pachyonychia Congenita Project is a voluntary, non-profit 501(c)(3) organization focused on finding a cure for pachyonychia congenitaI, a hereditary genetic skin disorder characterized by blisters on the feet and hands, thickened fingernails and toenails, and other painful symptoms. The organization funds research grants, sponsors scientific and patient meetings, offers patient networking, as well as educational services for both patients and medical professionals.

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