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Ehlers Danlos Foundation of New Zealand

a/k/a: EDFNZ

Address

368 Butler Road, RD 3
Waipawa 4273
Hawkes Bay,
New Zealand

Phone

640-687-47799

Fax

640-687-47799

Email Address

flopsy@ihug.co.nz

Website

http://www.edfnz.org.nz

The Ehlers Danlos Foundation of New Zealand provides support and information to the families and sufferers of Ehlers Danlos syndrome. This is a group of hereditary connective tissue disorders characterized by defects of the major structural protein in the body. Symptoms and findings may include abnormally loose, flexible joints that may easily become dislocated; loose, thin, stretchy skin; and unusual fragility of the skin, blood vessels, and membranes. The foundation provides information to the public and the medical community about Ehlers Danlos syndrome and other related connective tissue disorders.

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