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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Primary Ciliary Dyskinesia Foundation

a/k/a: PCD

Address

10137 Portland Avenue South
Minneapolis, MN 55420
USA

Phone

612-386-1261

Fax

800-371-7575

Email Address

info@pcdfoundation.org

Chapters

6

Website

http://www.pcdfoundation.org

The PCD Foundation (Primary Ciliary Dyskinesia) is a voluntary, not-for-profit 501(c)(3) patient advocacy foundation that promotes research, increases public awareness, and provides information and support services for individuals and families affected by inherited ciliary disorders. Another name for primary ciliary dyskinesia is Kartagener syndrome. This disease results in a chronic cough, scarring of the airways, and recurrent lung infection as a result of malfunctioning cilia, the tiny, hair-like structures that normally provide protection from unwanted inhaled particles. The PCD Foundation offers information to patients, families, health professionals, and the public. Its services include patient networking, advocacy, research and general education.

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