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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Moyamoya.com

Address

PO Box 9602
Wichita, KS 67277
USA

Email Address

admin@moyamoya.com

Website

http://www.moyamoya.com

The Moyamoya.com is an Internet-based, self-help organization. Founded in 2003, it is dedicated to providing support to patients and family members affected by Moyamoya syndrome. This is a progressive disorder that affects the blood vessels in the brain and may lead to inadequate blood supply, and therefore inadequate oxygen delivery to the brain. As a rare-disorder organization, Moyamoya.com provides information to healthcare professionals and the general public, in addition to patients and families.

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