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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Basal Cell Carcinoma Nevus Syndrome Life Support Network

a/k/a: BCCNS Life Support Network


PO Box 321
Burton, OH 44021





800 Number


Email Address


The Basal Cell Carcinoma Nevus Syndrome Life Support Network (BCCNS) provides healthcare, counseling, and support services to children and adults manifesting inherited, metabolic, or genetic disorders or diseases most commonly known as basal cell carcinoma nevus syndrome, with particular emphasis on diagnosis and treatment of children evidencing the initial onset of BCCNS. Individuals with this syndrome, which is also known as Gorlin syndrome, are predisposed to cancer and congenital malformations. This organization provides referrals to healthcare facilities and/or specialists, group and individual counseling, networking, and education. It has an online forum for members. BCCNS is a registered 501 (c)(3) organization.

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