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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Support Organisation for Trisomy and Related Disorders

a/k/a: SOFTWA


Email Address


The Support Organisation for Trisomy and Related Disorders (SOFTWA) is a non-profit organization that helps families of children affected by trisomy 9 and other rare chromosomal conditions. "Trisomy" refers to the presence of an extra chromosome. Those affected are born with a whole or partial third chromosome rather than the expected two. Trisomy 9 refers to the ninth chromosome. SOFTWA provides information and other support services for families with an affected child.

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