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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Joseph Disease Foundation, Inc.

a/k/a: IJDF

Address

P.O. Box 994268
Redding, CA 96099
USA

Phone

530-246-4722

Fax

530-232-2773

800 Number

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TDD

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Email Address

mjd@ijdf.net

The International Joseph Disease Foundation, Inc., is a non-profit, voluntary organization that was established in 1977. The foundation is dedicated to assisting individuals who are affected by, or may be at risk for, Machado Joseph disease by providing information on the disorder, supporting and promoting clinical research, and helping affected individuals locate medical, social, and genetic counseling services. Joseph disease is a rare inherited disorder of the central nervous system characterized by the slow degeneration of certain areas of the brain. The foundation also engages in public education and offers a variety of materials including fact sheets, a flier on the history of the disease, and a newsletter.

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