You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Pulmonary Fibrosis Foundation

a/k/a: PFF


230 East Ohio Street
Suite 304
Chicago, IL 60611-3201



800 Number


Email Address


The Pulmonary Fibrosis Foundation (PFF) is a 501(c)(3) organization whose mission is to is to help find a cure for idiopathic pulmonary fibrosis (IPF). They advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families. dedicated to finding a cure for, and raising awareness of, pulmonary fibrosis, an often-terminal disease. This disease occurs due to microscopic injury, leading to scarring that causes the lungs to become stiff. The foundation is devoted to improving the quality of life for those afflicted with pulmonary fibrosis. It funds and supports research seeking treatments and, ultimately, a cure for this disease. The PFF also provides educational services for patients, their families, healthcare professionals, and the public. Its services also include networking and advocacy.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .