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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Human BSE Foundation

a/k/a: HBSEF


Matfen Court
Chester Le Street
County Durham, DH2 2TX
United Kingdom



Email Address


The Human BSE Foundation (HBSEF) is a registered charity in the UK founded in 1999. Its founders, and those who currently run the organization, are people who have lost a loved one, or are currently nursing a loved one, affected by variant Creutzfeldt-Jakob disease (vcjd), the form of mad cow disease that affects humans. HBSEF helps relatives, friends, and caregivers of people with human BSE. It provides: a help line to support patients, a rapid response system to assist in cases of hardship, information to caretakers regarding the needs of patients, an information bank to support lobbying efforts, and education for medical professionals and other care providers.

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