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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Creutzfeldt-Jakob Disease Research & Surveillance Unit

a/k/a: NCJDSU

Address

Western General Hospital
Crewe Road
Edinburgh, EH4 2XU
United Kingdom

Phone

440-131-5372128

Fax

440-131-3431404

Email Address

jan.mackenzie@ed.ac.uk

Website

http://www.cjd.ed.ac.uk/

The National Creutzfeldt-Jakob Disease Research & Surveillance Unit is a patient advocacy, research organization located in the United Kingdom. Founded in 1990, the unit monitors Creutzfeldt-Jakob disease (CJD) in the UK in order to identify any changes in the pattern of disease that might be attributable to the emergence of bovine spongiform encephalopathy, a variant of CJD. CJD is an extremely rare degenerative brain disorder characterized by the sudden development of rapidly progressive neurological and neuromuscular symptoms. The unit also identifies all cases of any form of CJD and studies the clinical features and diagnosis of these illnesses.

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