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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Real Hope for CDH Foundation

a/k/a: RHCDHF

Address

1171 Vermilion Road
Vermilion, OH 41089

Phone

216-533-4476

Email Address

cfirestone@centurytel.net

Website

http://www.realhopeforcdh.com

The Real Hope for CDH (Congenital Diaphragmatic Hernia) is a parent group dedicated to families of children born with congenital diaphragmatic hernias (CDH). This is a life-threatening birth defect in which the diaphragm does not completely form, allowing some of the contents of the abdomen to protrude into the chest and hinder the normal growth of lung tissue. Founded in 2004, Real Hope for CDH is a patient support group offering information on experiences of families involved in a CDH program at Shands Children's Hospital at the University of Florida. Approximately one in every 3000 babies is affected by CDH. Real Hope for CDH provides patient networking and informational materials to patients, professionals, and the general public.

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