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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Spina Bifida & Hydrocephalus Association of Ontario

a/k/a: SB&HAO


P.O. Box 103, Suite 1006
555 Richmond Street West
Toronto, Ontario, M5V 3B1





800 Number


Email Address


The Spina Bifida & Hydrocephalus Association of Ontario (SB&H) is a non-profit, general health organization located in Toronto. Founded in 1973, the association has as its mission to build awareness and drive education, research, support, care and advocacy for individuals and families affected by spina bifida and/or hydrocephalus. Spina bifida is a neural tube birth defect that occurs within the first four weeks of pregnancy. The spinal column fails to develop properly, resulting in damage to the spinal cord and nervous system. Hydrocephalus may be present at birth or develop later in life. It is the excessive accumulation of cerebrospinal fluid within the brain. SB&H seeks to help find a cure for these conditions, while also working to improve the quality of life for those affected. Its services include support groups, patient networking, research and advocacy.

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