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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Melorheostosis Association

a/k/a: MA

Address

410 East 50th Street
New York, NY 10022

Phone

517-521-4459

Email Address

kathleen@melorheostosis.org

Website

http://www.melorheostosis.org

The Melorheostosis Association is a non-profit organization dedicated to finding the cause, treatments and cure for melorheostosis. This is a rare condition that affects both bone and soft tissue. It can result in severe functional limitation, pain and deformity. The Melorheostosis Association hosts an annual conference for patients, physicians, and researchers, and also publishes a newsletter. Its web site provides information for patients and families, as well as for treating physicians, researchers and other professionals.

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