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Hallerman-Streiff Syndrome Resource

a/k/a: HSSG

Address

3524 Blenheim Road
Phoenix, MD 21131

Phone

443-318-4461

Email Address

hmbeam@gmail.com

Website

http://www.hallerman-streiffsupport.org

The Hallermann-Streiff Syndrome Resource is a non-profit, voluntary organization whose goal is to connect families who have Hallermann-Streiff syndrome, a rare genetic syndrome that is primarily characterized by distinctive malformations of the skull and facial region, degenerative skin changes, and short stature. Many affected individuals also have abnormalities of the eyes or the lenses of the eyes. The group offers support, friendship and information to affected individuals and families. It also seeks to raise awareness among medical professionals and the general public.

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