You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Spina Bifida Hydrocephalus Queensland

a/k/a: SBHQ


PO Box 8022
Queensland, 4102


(07-) 3-844 4600


(07-) 3-844 4601

Email Address


The Spina Bifida Hydrocephalus Queensland is a connecting point for information and services specific to spina bifida and hydrocephalus in Queensland, Australia. Spina bifida is a disabling birth defect that affects the development of the spine and spinal cord. Hydrocephalus results from blockage of the flow of cerebrospinal fluid through its natural pathways. The blockage causes an increase in pressure on the brain that may result in nerve damage.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .