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Myotonic Dystrophy Support Group
19-21 Main Road
Nottingham, NG4 3HQ
The Myotonic Dystrophy Support Group is a self-help group of volunteers who work throughout the United Kingdom to promote awareness of myotonic dystrophy, a form of muscular dystrophy that affects adults, and provide information and support to patients, family members, and healthcare professionals. The Myotonic Dystrophy Support Group offers friendship to reduce the sense of isolation patients can feel after they have received a diagnosis. The group offers opportunities for affected individuals to share their concerns or needs with others who understand their feelings.
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