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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Myotonic Dystrophy Support Group

a/k/a: MDSG


19-21 Main Road
Nottingham, NG4 3HQ
United Kingdom



800 Number


Email Address


The Myotonic Dystrophy Support Group is a self-help group of volunteers who work throughout the United Kingdom to promote awareness of myotonic dystrophy, a form of muscular dystrophy that affects adults, and provide information and support to patients, family members, and healthcare professionals. The Myotonic Dystrophy Support Group offers friendship to reduce the sense of isolation patients can feel after they have received a diagnosis. The group offers opportunities for affected individuals to share their concerns or needs with others who understand their feelings.

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