You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Spasmodic Torticollis ST/Dystonia, Inc.

a/k/a: STDI


PO Box 28
Mukwonago, WI 53149





800 Number


Email Address


The Spasmodic Torticollis ST/Dystonia, Inc., is a non-profit rare-disorder organization founded in 1989. Its mission is to assist patients in finding a faster diagnosis and more effective treatment for spasmodic torticollis. Spasmodic torticollis, also known as cervical dystonia, is a form of dystonia characterized by intermittent spasms of the neck muscles resulting in involuntary rotation and tilting of the head. Once a diagnosis and treatment are known, this empowers the patients and/or family to achieve a higher quality of life. Spasmodic Torticollis Dystonia, Inc., offers education and advocacy to affected individuals and family members.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .