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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Spasmodic Torticollis ST/Dystonia, Inc.

a/k/a: STDI

Address

PO Box 28
Mukwonago, WI 53149

Phone

262-560-9534

Fax

262-560-9535

800 Number

888-445-4588

Email Address

info@spasmodictorticollis.org

Website

http://www.spasmodictorticollis.org

The Spasmodic Torticollis ST/Dystonia, Inc., is a non-profit rare-disorder organization founded in 1989. Its mission is to assist patients in finding a faster diagnosis and more effective treatment for spasmodic torticollis. Spasmodic torticollis, also known as cervical dystonia, is a form of dystonia characterized by intermittent spasms of the neck muscles resulting in involuntary rotation and tilting of the head. Once a diagnosis and treatment are known, this empowers the patients and/or family to achieve a higher quality of life. Spasmodic Torticollis Dystonia, Inc., offers education and advocacy to affected individuals and family members.

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