The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
1307 White Horse Road
Voorhees, NJ 08043
firstname.lastname@example.org or email@example.com
The PMD Foundation is family-driven and proactively serves those affected by Pelizaeus-Merzbacher disease by supporting programs of education, research, service and advocacy. It is dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for healthcare providers; and promoting research into causes, treatment, prevention and cure of PMD. Pelizaeus-Merzbacher disease is a rare genetic disorder that usually affects only males. It is a degenerative disorder of the central nervous system in which coordination, motor abilities, and intellectual function deteriorate.
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