You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Mowat Wilson Support Group

a/k/a: Mwsupport

Address

13 Barry Avenue
Ingol
Lancashire,
United Kingdom

Phone

017-727-60119

Email Address

support@mowatwilsonsyndrome.org.uk

Website

http://www.mowatwilsonsyndrome.org.uk/

The aim of the Mowat Wilson Support Group is to make people aware of Mowat-Wilson syndrome and to put families who have an affected member in touch with other members or professionals. The group also shares information regarding the syndrome, and provides a message/forum board and chat room. Mowat-Wilson syndrome is a rare genetic disorder characterized by distinct facial features, moderate to severe intellectual disability and various congenital anomalies that do not occur in every case.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .