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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Aicardi Syndrome Foundation

a/k/a: ASF


PO Box 3202
St. Charles, IL 60174

800 Number


Email Address


The Aicardi Syndrome Foundation (ASF) is a voluntary rare disorder organization founded in 1993 to provide a network and financial support for families who have children afflicted by Aicardi syndrome, a congenital disorder in which the structure linking the two cerebral hemispheres of the brain (corpus callosum) fails to develop. ASF also provides grants for medical research on the disorder. In addition to patient networking, ASF also offers education and support groups to those affected.

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