The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Advocacy for Neuroacanthocytosis Patients
32 Launceston Place
London, W8 5RN
The Advocacy for Neuroacanthocytosis Patients (ANP) is an international association of doctors, researchers, patients, and patients' families and friends. It seeks to support patients and their families by facilitating communication and supporting research into the causes and effects of the diseases that make up the neuroacanthocytosis group. These are very rare disorders characterized by wasting of muscles with uncontrolled rapid muscular movements and abnormal red blood cells. A registered charity in the United Kingdom, this association maintains close ties with clinicians and researchers around the world. Its goal is better understanding and, eventually, therapies for neuroacanthocytosis and the other neurodegenerative basal ganglia diseases, including Alzheimer's Huntington's and Parkinson's diseases.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.