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Jeune's Syndrome Family Foundation

a/k/a: JSFF

Address

P.O.Box 631181
Highlands Ranch, CO 80163-1181

Phone

303-683-1508

Email Address

missyannbenson@qwest.net

Website

http://www.jeunesfamily.org

The Jeune's Syndrome Family Foundation provides information and support to families of children diagnosed with Jeune's syndrome. First described in 1955 by a French pediatrician, this is a rare genetic disorder characterized by dwarfism with short ribs, short limbs, and a long, narrow thorax with reduced lung capacity. Many of the affected children have died early in life, but in recent years, the titanium rib project has provided hope for many of these children. This project makes possible surgical rib expansion treatment. The foundation offers financial support for those needing to travel to obtain treatment for their children.

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