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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Trichorhinophalangeal Syndrome Association

a/k/a: TSA

Address

6585 Dawn Way East
Inver Grove Heights, MN 55076

Phone

651-450-0788

Email Address

TRPSA@comcast.net

Website

http://trpsa.org/trpsa_wp/

The Trichorhinophalangeal Syndrome Association (TRPSA) offers support, compassion, and informational materials to those with trichorhinophalangeal syndrome, an extremely rare inherited multisystem disorder with three types. TRPSA's mission includes increasing understanding of TRPS among patients, families and physicians. When possible, it offers family connections. Live online chats are also available. The goal is to increase awareness in the medical community, as wlel as the general population, in the hope that more treatments and possibly a cure might be found in the future.

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