The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Trichorhinophalangeal Syndrome Association
6585 Dawn Way East
Inver Grove Heights, MN 55076
The Trichorhinophalangeal Syndrome Association (TRPSA) offers support, compassion, and informational materials to those with trichorhinophalangeal syndrome, an extremely rare inherited multisystem disorder with three types. TRPSA's mission includes increasing understanding of TRPS among patients, families and physicians. When possible, it offers family connections. Live online chats are also available. The goal is to increase awareness in the medical community, as wlel as the general population, in the hope that more treatments and possibly a cure might be found in the future.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.