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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Patient Registries at Slone: Myeloma & MDS

a/k/a: PRSM

Address

Slone Epidemiology Center
1010 Commonwealth Avenue
Boston, MA 02215

Fax

617-738-5119

800 Number

800-231-3769

Email Address

registry@slone.bu.edu

Website

http://www.bu.edu/prs

The Patient Registries at Slone: Myeloma & MDS, located at the Slone Epidemiology Center at Boston University, is a voluntary research project enrolling patients recently diagnosed with multiple myeloma or myelodysplastic syndrome (MDS). Multiple myeloma is a rare form of cancer that is characterized by the excessive production and improper function of the white blood cells known as plasma. Myelodysplastic syndromes (MDS) are a group of rare blood disorders in which the bone marrow does not make enough healthy blood cells. There are several types of these syndromes. These registries gather information on the clinical, economic, and quality of life outcomes experienced by patients on both established treatments and new modalities. This information will help doctors and researchers better understand these diseases with the goal of helping patients now and in the future.

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