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MowatWilson.org
a/k/a: MW
Address
4009 Tyler William Lane
Las Vegas, NV 89130
Phone
702-658-5391
Email Address
davec@mowatwilson.org
Website
The MowatWilson.org is a web site where families can share information about Mowat-Wilson syndrome (MWS), including support group information, a forum, photos and profiles of children with MWS and a chat area. MowatWilson.org helps to inform the public about this rare condition and helps those affected by it not feel so alone by giving them a place to exchange information and experiences with others in the same situation. MWS is a rare genetic disorder that may be apparent at birth or in the first year of life. It is caused by an abnormality in the ZFHX1B gene that is usually the result of a new genetic change (mutation) in the affected person. MWS is characterized by mental retardation, distinctive facial features and seizures. Those affected also have a higher likelihood of being affected by Hirschsprung disease, a gastrointestinal condition.
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