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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MowatWilson.org

a/k/a: MW

Address

4009 Tyler William Lane
Las Vegas, NV 89130

Phone

702-658-5391

Email Address

davec@mowatwilson.org

Website

http://www.mowatwilson.org

The MowatWilson.org is a web site where families can share information about Mowat-Wilson syndrome (MWS), including support group information, a forum, photos and profiles of children with MWS and a chat area. MowatWilson.org helps to inform the public about this rare condition and helps those affected by it not feel so alone by giving them a place to exchange information and experiences with others in the same situation. MWS is a rare genetic disorder that may be apparent at birth or in the first year of life. It is caused by an abnormality in the ZFHX1B gene that is usually the result of a new genetic change (mutation) in the affected person. MWS is characterized by mental retardation, distinctive facial features and seizures. Those affected also have a higher likelihood of being affected by Hirschsprung disease, a gastrointestinal condition.

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