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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Adult Polyglucosan Body Disease Research Foundation

a/k/a: APBDRF


8 West 37th Street
Suite 901
New York, NY 10018





Email Address




The Adult Polyglucosan Body Disease Research Foundation (APBDRF) is the only national non-profit health organization dedicated solely to finding the cause and cure for adult polyglucosan body disease (APBD). APBDRF strives to be the leading charitable funder and advocate of research worldwide. APBD is a fatal, neurodegenerative disease that attacks nerve cells and pathways in the brain. It usually occurs later in life and progresses slowly. People with this condition develop problems in their ability to walk, speak, think and function normally in a variety of ways. APBDRF's mission is to improve the diagnosis and treatment of APBD, support individuals and families affected by the disease, and increase awareness of APBD among health professionals and the public. Their ultimate goal, and the heart of their program, is to find the underlying cause as well as a cure for APBD and its complications through the support of research, education, and patient services.

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