You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Organization of Vascular Anomalies

a/k/a: NOVA

Address

PO Box 38216
Greensboro, NC 27438-8216

Email Address

admin@mail.novanews.org

Chapters

4

Website

http://www.novanews.org

The National Organization of Vascular Anomalies (NOVA) is a non-profit, voluntary organization whose mission is to provide assistance to patients and their families affected by vascular anomalies including hemangioma, vascular malformations, and related syndromes. It also provides resource materials to medical professionals to assist them in management of patient care. Hemangioma is the most common benign tumor of infants and children. Vascular malformations are abnormally developed blood vessels. Established in 1996 and incorporated in 1997, NOVA serves patients and family members, the general public, health professionals, and other professionals such as educators, with programs and activities that include free medical conferences, support groups, patient networking, education, referrals, audio-visual aids, brochures, web site and a newsletter. The organization also assists with insurance claims and coordinates efforts for free transportation to medical appointments. NOVA, formerly Hemangioma Newsline, changed its name in August 2004.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.