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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Hughes Syndrome Foundation

a/k/a: HSF

Address

Conybeare House
Guy's Hospital
London, SE1 9RT
United Kingdom

Phone

020-718-88217

Email Address

info@hughes-syndrome.org

Chapters

15

Website

http://www.hughes-syndrome.org

The Hughes Syndrome Foundation's (HSF) mission is to provide information and education on Hughes Syndrome and support research for it. HSF offers understanding and support to sufferers of Hughes Syndrome which is known medically as antiphospholipid syndrome (APS). APS is a rare immunological disorder characterized by recurring blood clots. Blood clots can form in any blood vessel of the body. The specific symptoms and severity of APS vary greatly from case to case depending upon the exact location of a blood clot and the organ system affected. APS may occur as an isolated disorder (primary antiphospholipid syndrome) or may occur along with another autoimmune disorder such as systemic lupus erythematosus (secondary antiphospholipid syndrome).

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