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Sandhoff Disease Informational Website

a/k/a: SHD


8825 Hastings Blvd.
Hastings, FL 32145



Email Address


The Sandhoff Disease Informational Website is dedicated to providing accurate information, support and guidance for parents, families and health care workers dealing with or treating children with Sandhoff Disease. Sandhoff Disease is a rare inherited lipid storage disorder resulting in the progressive deterioration of the central nervous system. A deficiency of the enzyme hexosaminidase (beta-subunit) results in the accumulation of certain fats (lipids or fatty acids) in the brain and other organs of the body. Sandhoff Disease is a severe form of Tay-Sachs Disease and is not limited to any particular ethnic group.

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