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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Alpha-1 Advocacy Alliance

a/k/a: A1AA

Address

PO Box 202
Wolftown, VA 22748

Phone

540-948-6777

Fax

540-948-6763

800 Number

866-367-2122

Email Address

webmaster@alpha1advocacy.org

Website

http://www.alpha1advocacy.org

The Alpha-1 Advocacy Alliance (A1AA) is a voluntary organization whose mission is to advocate for all individuals affected by alpha-1-antitrypsin deficiency (A1AD) through personal advocacy, education, support, and public policy. A1AD is a hereditary disorder characterized by low levels of a protein called alpha-1-antitrypsin (A1AT) which is found in the blood. This deficiency may predispose an individual to several illnesses but most commonly appears as emphysema, less commonly as liver disease, or more rarely, as a skin condition called panniculitis. A deficiency of A1AT allows substances that break down protein (proteolytic enzymes) to attack various tissues of the body. This results in destructive changes in the lungs (emphysema) and may also affect the liver and joints.

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