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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Cystinuria Foundation

a/k/a: ICF

Address

712 Great Plains Court
PO Box 271004
Fort Collins, CO 80527-1004

Phone

970-204-0031

Email Address

Matthew.Lewis@colostate.edu

Website

http://www.cystinuria.org

The International Cystinuria Foundation (ICF) is a non-profit, voluntary organization whose mission is to strengthen, educate, and further the general well being of the cystinuric community. ICF strives to support a growing and strong group of patients, families, professionals, and friends by providing educational and health related resources to affected individuals worldwide. ICF also aims to promote knowledge of cystinuria within the research and medical communities in order to reduce kidney destruction, renal impairment, and subsequent health, vocational, and economic impact. Cystinuria is an inherited metabolic disorder characterized by the abnormal movement (transport) in the intestines and kidneys, of certain organic chemical compounds (amino acids). These include cystine, lysine, arginine, and ornithine. Excessive amounts of undissolved cystine in the urine (cystinuria) cause the formation of stones (calculi) in the kidney, bladder, and/or ureter.

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